our mission

onevoice was born out of the frustration experienced by rare disease community members faced with a fractured and disorganized ecosystem.

misdiagnosis, potential inaccuracy of information, lack of resources, difficulty finding support – all conspire to make dealing with an already life-altering moment even more baffling.

we have heard the demands by patients, caregivers and advocates, physicians, healthcare professionals and researchers for a single place where they can meet, share, learn and collaborate.

onevoice achieves integration of tools providing emotional support and convenient access to the best knowledge.

now it’s here, onevoice is a space for everyone –
one rare disease at a time.

seven pillars. onevoice.